Connect with others and get your questions answered from experts on a variety of topics related to living with a chronic illness.
Topic: How to Advocate for Yourself or Your Loved One
Guest Speaker: Abbie Cornett, Patient Advocate, IG Living Magazine
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Let's Talk: Chelsey Safken
Despite being ill since a child and diagnosed with multiple diseases, including common variable immune deficiency, Chelsey Safken feels incredibly blessed to have a loving husband, Joe, and three healthy children: Lilia, Trace and Alana...
Skin conditions like rashes are certainly not unique to individuals with primary immunodeficiency diseases (PI). While troublesome complaints of eczema or psoriasis frequently occur in people with normal immune systems, skin diseases are often one of the earliest visible symptoms of PI. And, as many PI patients have learned, certain types of rashes and skin conditions are also a side effect of intravenous immune globulin (IVIG) treatments. “A rash is a very common side effect of IVIG, and some patients develop worse rashes than others,” says Abbie Cornett, IG Living’s patient advocate....
Ask the Experts
Reader: Is SCIG Approved by the FDA to Treat CIDP?
Leslie: SCIG is not yet FDA approved to treat CIDP, but some large-scale trials are underway. One trial of CSL Behring’s Hizentra has recently been completed, but study results aren’t posted yet. Based on those results, CSL Behring should soon be...
Meet the Staff
Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego
Erika Lawrence, PhD
Associate Professor Department of Psychology University of Iowa
Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona
Co-founder of the Jeffrey Modell Foundation
Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego
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