Let's Talk: Profile: Matthew Tillyer
Several years ago, Kristen and Michael Tillyer were a normal working couple with two active boys. Like most families, their days consisted of juggling careers, homework deadlines and extracurricular activities. Then, their lives and priorities dramatically shifted when their oldest son, Matthew, experienced unusual neurological symptoms following a severe case of bacterial pneumonia. A once-energetic athlete, Matthew was suddenly on death’s door with no diagnosis or treatment plan in sight....
A Patient’s Guide to Nonprofit Support
Patients living with rare diseases need a variety of people on their healthcare and support teams to help them navigate the ups and downs of symptoms and treatment strategies. Statistically, these patients are not alone; more than 30 million Americans have been diagnosed with some type of rare or chronic illness. But, that doesn’t mean having a diagnosis isn’t extremely lonely, and knowing where to seek help when problems arise can offer tremendous peace of mind....
Ask the Experts
Reader: Can IVIG cause swollen and painful joints?
Michelle and Leslie: There are many things that can reduce the side effects you are experiencing. First, discuss with your physician whether switching brands might improve your symptoms. Also, you can pretreat prior to receiving the infusion to lessen its side effects. A third option is to consider switching to subcutaneous IG infusions, which might minimize some of the side effects you are experiencing....
Meet the Staff
Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego
Erika Lawrence, PhD
Associate Professor Department of Psychology University of Iowa
Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona
Co-founder of the Jeffrey Modell Foundation
Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego
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