Reader Teleconference

Connect with others and get your questions answered from experts on a variety of topics related to living with a chronic illness. To participate in the next Reader Teleconference, complete the registration form to be added to our email invitation list.


Let's Talk: Profile: Wendy Nawara, MSW

Wendy Nawara was no stranger to medical adversities faced by young children. The Chicago native spent the better part of her childhood at Children’s Memorial Hospital with a younger brother who had Lowe syndrome, a rare X-linked genetic disorder. Wendy grew up with a desire to assist children with special needs, eventually earning both a bachelor of science degree in elementary education and a master’s in social work. But it wasn’t until her own children were diagnosed with pediatric autoimmune neuropsychiatric disorder associated with streptococcus/pediatric acute-onset neuropsychiatric syndrome (PANDAS/PANS) and comorbid immune deficiencies that Wendy discovered her true mission and calling.... more

Product Guide

A Patient’s Guide to Healthcare Apps

Health-related mobile apps are rapidly becoming mainstays for tracking, managing and maintaining health. For the chronically ill, technology can offer practical and moral support, and facilitate everything from interacting with physicians and filling prescriptions to monitoring symptoms and tracking medication side effects. Even better, many of these apps are completely free (or available for a nominal fee) to download on a smart phone or tablet, and most are very easy to use, even for the not-too-tech-savvy.... more

Ask the Experts

Reader: What is a good diet for CVID patients?

Abbie: I spoke with immunologist Terry Harville, MD, who stated there are few studies dealing with nutrition and CVID, so most articles provide expert opinion and conjecture. According to Dr. Harville, a healthy diet that includes little to no red meat, few processed meats and fresh-cooked vegetables is recommended for people with immune deficiencies. Milk, whether whole, skim or low-fat, does not really matter, but it should be consumed in moderation.... more

Meet the Staff

Cheryl Brooks
Assistant Editor

Abbie Cornett
Patient Advocate

Advisory Board

Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego

Erika Lawrence, PhD
Associate Professor Department of Psychology University of Iowa

Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona

Fred Modell
Co-founder of the Jeffrey Modell Foundation

Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego

Patient Advocate

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