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Dedicated to bringing comprehensive healthcare information, immune globulin information, community lifestyle and reimbursement news.

Posted on 25. February 2011

Because I Am His Mother

By Tammie Allegro

When I first came to work at FFF Enterprises, the company that publishes IG Livin [More]
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Posted on 18. February 2011

IG Living Fan Spotlight - Joanna Tierno

By Carla Schick

Recently, we posted this question on the IG Living Facebook page:What’s on your min [More]
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Categories: Fan Spotlight
Posted on 11. February 2011

There’s a Fee for That

By Kris McFalls

More and more, the healthcare industry is adopting the approach of the airlines by [More]
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Categories: Speaking Out
Posted on 4. February 2011

Am I My Brother’s Keeper?

By Tammie Allegro There has been a lot of talk about making health insurance mandatory and charging a fee for those who don’t carry it. And there are arguments to be made on both sides of the fence. So many people go through life thinking how things will directly affect them and their inner... [More]
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Categories: Need to Know
Posted on 28. January 2011

No Penguin Left Behind

By Carla Schick

On a recent episode of the Oprah show, some of her ultimate fans were given the opp [More]
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Posted on 21. January 2011

IGL Fan Spotlight - Cynthia Johnson-Oliver

Cynthia captured our attention with her insightful post on our Facebook page:  “After several y [More]
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Categories: Fan Spotlight
Posted on 14. January 2011

We Are All a Little Odd

By Tammie Allegro

On the eve of her 7th birthday, my youngest daughter declared: “I don’t want to t [More]
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Posted on 7. January 2011

Time Most Valued

By Kris McFalls
Time is a unit of measurement that helps describe an action or event. Everyone has a [More]
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IG Living Blog | Toto, We’re Not In Kansas Anymore!
IMMUNE  GLOBULIN  COMMUNITY
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Dedicated to bringing comprehensive healthcare information, immune globulin information, community lifestyle and reimbursement news.

Posted on 26. May 2010

Toto, We’re Not In Kansas Anymore!

By Ronale Tucker Rhodes

Since you’re reading this blog, you know the frustrations of living with an immune disease. It can be like waking up in the Land of Oz, wandering down a Yellow Brick Road in search of ways to understand what caused your illness and how to feel better, to explain to others how it feels to be constantly ill, and to find and bond with others who are experiencing the same physical and emotional pain. Wouldn’t it be nice to be in Dorothy’s shoes, and be able to click your heels three times and go back to - no, not Kansas - but to a less-frustrating existence?

As the editor of IG Living magazine, I’m keenly reminded every day about this journey down the Yellow Brick Road for those in the immune-compromised community. And, while we have been planning the launch of this blog for many months, I’m now more excited than ever about what this blog will mean to you after having attended the Clinical Immunology Society’s First Primary Immune Deficiency Conference in Philadelphia. For three days, seasoned and newly trained immunologists discussed and debated emerging research, diagnoses and treatment options - motivated by how what they do affects patients and their families. How wonderful it was to have a forum where physicians could come together to discuss their theories and share their case studies! But, what this conference really got me excited about is that it showed me that, now, you also can have the same type of forum through this blog.

Don’t worry. We don’t expect you to come up with the topics to discuss each week. Like the conference, we’ll do it for you. Each week, we’ll post serious and humorous insights and anecdotal stories about living with an immune disease, spotlights on people who deserve to be admired, strategies for getting the information you need, accounts of current events and breaking news and what they mean to you, and more. Everything posted on this blog site will be about finding solutions, sharing stories and just getting a good laugh.

But, it’s important for you to understand that while this blog is an extension of the content we provide in IG Living magazine, it is very different content. We like to think of it as content with a “point of view” - ours and yours. Meaning, we don’t want to be the lone content contributors. We - and others in the IG Living community - want to hear your thoughts and opinions about what we post weekly.

As Glinda the Good Witch of the North said to Dorothy, “You always have had the power to return home.” We, on the other hand, have the power through this blog to control the direction we stroll on our journey down the Yellow Brick Road. Are you ready to take the first step?

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Categories: Life With IG

Comments (5) -

Nicole Kofoed
10:00 AM on Thursday, June 03, 2010

Thanks so much for all of the resources that you are providing us with! My nine year old son has primary hypogammaglobulinemia, IgG subclass 2 & 4 with neutropenia. Despite the hardships that he faces, we have instilled in him the ability to live life to the fullest! Our skate boarding, rock climbing, BMX riding adventurer never lets his health get him down! We have learned so much by using your resources; how to be cautious with some things and set our minds at ease with others... because of your resources, we are helping Cody live a full, happy life! Thank you!

Jake
9:15 AM on Friday, June 04, 2010

Reading this was very comforting.  I do feel like "waking up in the Land of Oz, wandering down a Yellow Brick Road in search of ways to understand what caused your illness and how to feel better, to explain to others how it feels to be constantly ill, and to find and bond with others who are experiencing the same physical and emotional pain."  I can so relate!!!!

I am 35 and was just diagnosed with CVID 1 year ago.  It's been a rough year dealing with Insurance companies, Doctors and many new diagnoses...

This seems to be never ending, but at least now I know why I've been sick my whole life...

Thanks for developing this Blog, everything helps!

Amy
5:47 PM on Monday, June 07, 2010

Thank you...thank you...thank you...  your efforts are much appreciated! I look forward to getting my new issue every month!  There is so much great information there!

Elaine
3:09 PM on Thursday, June 17, 2010

I am glad to have this format where I can share my frustrations, joys and thoughts. I was diagnosed in 1996 after some very serious illnesses. After about 18 months of treatment I was advised that they had done everything they could and that if I didn't stop working at my job I would die.

I then took a leave of absence and did better but 6 weeks after going back to work, I had pneumonia again. Then I quit and got better. Not yet having learned my lesson, I went back to work and all went well for about a year. Then I began to be sick alot. I was able to work 4 more years and am now retired on disability due to my illness and its complications and some other health issues I have.

I am thankful to be alive but this year I was in the hospital in February with MRSA pneumonia and strp in the bloodstream and I was in the hospital in March with "regular" pneumonia. I am on SqIV but did no better on IVIG. So while I glad I am alive and can be treated, I sure wish I could stay healthy,

I also wish we could have had this 15 years ago.

Carol K Keagle
1:52 AM on Friday, October 08, 2010

Thank you from the bottom of my heart for providing patients with a PIDD a service in which no other exists in a family oriented format. I love the mag. and share with others every chance I get. Once again, thank-you.

Carol Keagle, CVID

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