By April McGowan
Last night, my son came in the living room and said, “I love Tuesdays because we get to watch something fun and we always have popcorn.” He looked so happy. And that really struck me, because up until about five months ago, Tuesdays were not fun. Tuesdays are the day I do my immune globulin (IG) infusion treatment for my common variable immune deficiency (CVID).
I’ve blogged a couple of times about how my attitudes have changed since I started treatment for CVID. I started thinking of my IG infusion as “immunobuddies” rather than an enemy intent on making me feel fatigued, achy and stealing my night and part of the next day away. I also stopped looking at Tuesdays like I wanted to skip them altogether. Instead, I started to think about how I could make this routine into something a bit more enjoyable.
I used to just try to keep my stress low on Tuesdays and make an easy meal before I started my treatment (I won’t share with you the perils of trying to cook while carrying around a pump - let’s just say getting your lines caught on a cutting board makes you want to plan ahead!)
But now, not only do I get dinner all prepped and finished before I start my infusion, but I also make popcorn. Popcorn? Yep. Because I’ve turned Tuesday into “low stress, let’s have fun” night. We’ll turn on a show I love or put in a movie we’ve been waiting to see.
My kids used to say “Oh, it’s your treatment night” in an empathetic, sad voice. Now, all of us have something to look forward to. My two hours pass, and we have a nice evening together. I’m still curled in a ball in the chair after my infusion is over, but at least I’m in pretty good emotional condition now.
And, I get popcorn.
What sorts of things do you do to cope with a rough time?