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Dedicated to bringing comprehensive healthcare information, immune globulin information, community lifestyle and reimbursement news.

Posted on 26. June 2014

A Call for Open Access to Medical Journals

Rare disease patients and advocates are well-known for being astute investigators. Gaining access to medical journals could provide them with information and insights to assist in treatment plans and improve quality of life. [More]
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Posted on 19. June 2014

The Words We Use: Language and the Patient Experience

Illness. Disease. Condition. Just words until they apply to you. This blogger discusses the power of words and the way they are used to define our diagnosis, and sometimes to define us. [More]
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Posted on 12. June 2014

Learning to Speak My Truth

Having a rare disease often requires a lot of explaining and even then, the explanation is often misunderstood. Sometimes speaking up requires courage and a willingness to be completely honest – even with yourself. [More]
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Posted on 4. June 2014

Some Doctors Are Worth Stalking

It’s not uncommon for patients to change doctors. But what happens when a doctor you love suddenly “breaks up” with you? [More]
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Posted on 29. May 2014

Vacation Dread?

Summer travel can be exciting and fun. It can also be a recipe for stress and anxiety. This blogger shares coping strategies when traveling with chronic illness. [More]
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Posted on 22. May 2014

Illness-Free for 72 Hours: What Would You Do?

IG Living is hosting its fourth annual essay contest open to IG patients and their caregivers ages 18 and older. You could win an iPad mini! [More]
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Posted on 15. May 2014

At a Loss for Words

Some medications have unsettling side effects. When this blogger starts mixing up words in her sentences, the results are both frustrating and humorous. [More]
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Posted on 8. May 2014

Just Push

Just push yourself. It’s a work ethic and core value for many – but for families with chronic illness, when is pushing yourself simply too much? [More]
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