IG Living Blog
share

Dedicated to bringing comprehensive healthcare information, immune globulin information, community lifestyle and reimbursement news.

Posted on 31. July 2014

Seeing Yourself as Healthy

Has your illness changed the way you see yourself? This blogger encourages those with chronic illness to see themselves as more than a diagnosis. [More]
  more
Posted on 17. July 2014

Creating Connections

The recent BIO International 2014 conference offered helpful insights about drug developments that show great promise for the improved health of patients with debilitating rare diseases. Patient Advocate Abbie Cornett reports. [More]
  more
Posted on 10. July 2014

“It’s Not You, It’s Me”: Are All Friendships Worth Pursuing?

Chronic illness is isolating, and it can be a comfort to connect with others who share our diagnosis. Sadly, sharing a rare illness is not always the magic glue that makes a friendship stick. [More]
  more
Posted on 3. July 2014

A New Independence

As we celebrate America’s independence, it’s good to pause and reflect on what independence really means, especially when chronic illness may cause many to see freedom from a whole new perspective. [More]
  more
Posted on 26. June 2014

A Call for Open Access to Medical Journals

Rare disease patients and advocates are well-known for being astute investigators. Gaining access to medical journals could provide them with information and insights to assist in treatment plans and improve quality of life. [More]
  more
Posted on 19. June 2014

The Words We Use: Language and the Patient Experience

Illness. Disease. Condition. Just words until they apply to you. This blogger discusses the power of words and the way they are used to define our diagnosis, and sometimes to define us. [More]
  more
Posted on 12. June 2014

Learning to Speak My Truth

Having a rare disease often requires a lot of explaining and even then, the explanation is often misunderstood. Sometimes speaking up requires courage and a willingness to be completely honest – even with yourself. [More]
  more
Posted on 4. June 2014

Some Doctors Are Worth Stalking

It’s not uncommon for patients to change doctors. But what happens when a doctor you love suddenly “breaks up” with you? [More]
  more