"21st Century Complete Medical Guide to Primary Immune Deficiency, Severe Combined Immunodeficiency (SCID), Chronic Granulomatous Disease (CGD), for Patients and Physicians," by PM Medical Health News, contains federal government clinical data and practical information for patients and physicians.

"A Handbook for Care Givers," by Helen Rummelsburg, gives an account of caring for her husband and offers helpful hints for patients and caregivers. Available at the GBS website bookstore.

"Anatomy of An illness," by Norman Cousins, is a bestseller about overcoming illness and the triumph of the human spirit. The premise is that the human mind is capable of promoting the body's capacity for combating illness and healing itself even when faced with a seemingly hopeless medical predicament.

"A Parent's Guide to Special Education: Insider Advice on How to Navigate the System and Help Your Child Succeed," by Linda Wilmshurst and Alan W. Brue, is available on Amazon.com

"Bed Number Ten," by Sue Baier, provides a view of long-term care through the eyes of a patient totally paralyzed with GBS.

"Caring for a Child with GBS," by Patricia Schardt, is a short guide written by a mother of a child with CIDP. Available at the GBS website bookstore.

"The Confused Consumer's Guide to Choosing a Health Care Plan: Everything You Need to Know," by Martin Gottlieb, helps consumers through the confusing maze of choosing a healthcare plan.

"Coping with a Myositis Disease," by James R. Kilpatrick, is written by myositis patients telling their personal stories.

"The Everyday Guide to Special Education Law," by Randy Chapman, Esq., makes the law accessible to parents so they can be more effective advocates for their children.

"If You're Having a Crummy Day, Brush Off the Crumbs!," by Mims Cushing, is a how-to book that offers more than 75 ways to help people get through the days when neuropathy (or other ailments) is particularly difficult.

"Inclusion-Body Myositis and Myopathies," by Valerie Askanas (Editor), Georges Serratrice (Editor) and W. King Engel (Editor), is devoted to discussing the two forms of inclusion-body myositis.

"Living Creatively with Chronic Illness: Developing Skills for Transcending the Loss, Pain and Frustration," by Eugenia G. Wheeler, is a self-help book specifically designed to help the chronically ill, their families, friends, counselors, medical personnel and the clergy.

"Living with Myositis", edited by Jenny Fenton, is an accessible, realistic and sympathetic guide to facts, feelings and future hopes.

"Managing Pain Before It Manages You," by Dr. Margaret A. Caudill, is a wellspring of wisdom and practical approaches that can help transform your life and your pain.

"Medifocus Guide to Peripheral Neuropathy," is a guide to current and relevant PN research, organized into categories for easy reading.

"Myositis – A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References," by ICON Health Publications, is a three-in-one reference book: a complete dictionary of terms relating to myositis, a list of bibliographic citations about the disorder and a guide to Internet resources.

“Myositis and You: A Guide to Juvenile Dermatomyositis for Patients, Families, and Healthcare Providers,” an indispensable resource for families of children with myositis and their healthcare teams, is available at www.myositis.org.

"No Laughing Matter," by Joseph Heller (the best-selling author of Catch-22), who teamed up with Speed Vogel, his best friend, to describe Heller's battle with and triumph over GBS.

"Not Dead Yet: a Long Strange Trip from Doctor to Patient and Back Again," by Dr. Robert Buckman, an oncologist and comic writer, is a witty account of his life as a doctor and autoimmune disease survivor.

"Numb Toes and Aching Soles," by John Senneff, discusses the symptoms, causes, tests, treatments and coping strategies for peripheral neuropathy.

"Numb Toes and Other Woes," by John Senneff, is the second in a series of three books. It focuses on clinical findings and treatment strategies for PN.




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"Nutrients for Neuropathy," by John Senneff, the third in the Numb Toes series, is focused exclusively on nutrient supplementation as a means for managing PN.

"The Official Patient's Sourcebook on Inclusion Body Myositis," by James N. Parker (Editor) and Philip M. Parker (Editor), is a reference manual for self-directed patient research.

“Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won’t Stop” by Dr. Norman Latov, MD, PhD, published 2007, Weill Medical College, Cornell University, provides practical information on all the neuropathies, causes and treatments.

"Pride and the Daily Marathon," by Jonathan Cole, describes how Ian Waterman was suddenly struck down at work by a rare neurological illness that deprived him of all sensation below the neck, and how he reclaimed a life of full mobility.

"Pronoia Is the Antidote for Paranoia," by Rob Brezsny, explores the best way to attract the blessings that the world is conspiring to give us.

"When You're Ill or Incapacitated" comprises one-half the booklet it shares with "When You're the Caregiver," both written by James E. Miller, suggesting 12 things to remember or do in each role.

"YOU the Smart Patient: An Insider's Handbook for Getting the Best Treatment," by Michael F. Roizen, M.D., and Mehmet C. Oz, M.D. with the Joint Commission on Accreditation of Healthcare Organizations, shows you how to tackle such healthcare decisions as picking the best doctors and hospitals for you, knowing when to get a second opinion, and more.

Just for Kids
"Germs Make Me Sick," by Melvin Berger, explains with colorful illustrations how your body fights germs.

"Little Tree: A Story for Children With Serious Medical Illness," by Joyce C. Mills, is a comforting fable for young children facing serious life challenges.

"My IVIG Book," written from a 3-year-old's perspective about his infusions, comes with a kit for other children to create their own personalized book. Free from Baxter.

"Our Immune System," enables children who are immune deficient and their families to explore together the immune system. Available from the Immune Deficiency Foundation.