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Myositis

Websites
The mission of The Myositis Association, is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases.

International Myositis Assessment and Clinical Studies Group is a coalition of healthcare providers and researchers with global approaches to improved treatments and understanding of myositis.

The Cure JM Foundation was created specifically to find a cure for Juvenile Myositis (JM), while also providing support and information for families affected by JM.

Johns Hopkins Myositis Center is a new patient treatment center that brings the expertise of rheumatologists and neurologists into a single clinic for patients with inflammatory (autoimmune) and toxic (drug induced) muscle conditions.

Online Support Groups
Juvenile Myositis Family Support Network

Learn more about myositis disease and meet others who have been diagnosed with it. www.myositissupportgroup.org

Myositis Association Community Forum

Myositis Support Group UK

Yahoo Myositis Support Group Discussion Board

The California Myositis Symposium held in 2005 was captured on DVD. It contains information about polymyositis, dermatomyositis and inclusion body myositis, including doctors’ discussions and detailed slides and explanations of muscle biopsies, skin rash, and tools used to diagnose these diseases. Other presentations offer valuable lessons in maintaining a positive attitude, exercises for physical therapy and innovative tools to aid in everyday activities. The DVD is available at no charge by sending an email to Richard Gay at rgay@socal.rr.com.



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