Websites
Immune Deficiency Foundation (IDF)
is dedicated to improving the diagnosis and treatment of PIDD through research and education.

Jeffrey Modell Foundation is dedicated to early and precise diagnosis, meaningful treatments and, ultimately, cures for PIDD.

National Institute of Child Health and Human Development (NICHD) is part of the National Institutes of Health. Go to the "Health Information and Media" tab on the website and do a search under "primary immunodeficiency."

American Academy of Allergy, Asthma & Immunology has a helpful Q&A section on its website, with resources and tips for those with various immune deficiencies.

Rainbow Allergy-Immunology provides comprehensive diagnostic, therapeutic and consultative services for children and adults with immunologic diseases. See patient information about subcutaneous IG therapy here.

Baxter's website offers in-depth information on immunology, PIDD and treatment with intravenous immune globulin. Click on "European" to see SCIG information.

Michigan Immunodeficiency Foundation seeks to improve the quality of life for Michigan residents affected by PIDD.

International Patient Organization for Primary Immunodeficiencies (IPOPI) promotes the worldwide improvement in the care and treatment of PIDD patients.

Online Support Groups
Rhode Island peer group

Connect to a Jeffrey Modell Foundation Message Board.

Chat with peers on IDF's Forum.

A chat group for all ages

For teens only!

Return to main Resources page

Chat with parents of children affected by primary immune deficiency.

Chat with peers affected by primary immune deficiency.

A group of family and friends of patients with primary immune deficiencies maintains a nonprofit network in the New England area.

Online Pamphlets and Education
The “Immunodeficiency in Pediatrics” program or the PREP® Audio series is a new pediatrician education program that can be obtained by contacting the American Academy of Pediatrics at 866-843-2271 or visiting www.prepaudio.org.

Go to the National Institute of Allergy and Infectious Diseases site and search for "primary immune deficiency."

"Understanding the Immune System:
How It Works," by the U.S. Department of Health and Human Services.

"NIAID Initiative Addresses Primary Immune Deficiency Diseases by National Institute of Allergy and Infectious Diseases"