Websites

American Autoimmune Related Diseases Association Inc., www.aarda.org, is the only national organization dedicated to addressing the problem of autoimmunity.
800-598-4668

Autoimmune Information Network Inc., www.aininc.org, helps patients and family cope with the disabling effects of autoimmune diseases.
732-262-0450
autoimmunehelp@aol.com 

National Association for Rare Disorders (NORD), www.rarediseases.org, promotes awareness of rare diseases and the need for research.
800-999-6673
orphan@rarediseases.org

National Institute of Neurological Disorders and Stroke (NINDS), www.ninds.nih.gov, offers treatment, diagnosis and research information for rare diseases.
800-352-9424
braininfo@ninds.nih.gov

Diagnosed with SPS in 1994, Debra Kemery recounts her experience and offers practical information about coping with the disease at www.stiffman.org.

Mayo Clinic
Stiff person syndrome: Can it be treated?

Books and Articles

“A Flower Grows in Stone: The Diary of a Life in Progress,” a first-hand account of her struggle with stiff-person/Moersch Woltman syndrome, is written by first-time author Anisah Hassan. Available from Llumina Press, Ingram, and Baker & Taylor, www.llumina.com.