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General Web Resources
Just for Kids
"Germs Make Me Sick," by Melvin Berger, explains with colorful illustrations how your body fights germs.

"Little Tree: A Story for Children With Serious Medical Illness," by Joyce C. Mills, is a comforting fable for young children facing serious life challenges.

"My IVIG Book," written from a 3-year-old's perspective about his infusions, comes with a kit for other children to create their own personalized book. Free from Baxter.

"Our Immune System," enables children who are immune deficient and their families to explore together the immune system. Available from the Immune Deficiency Foundation.

Nutrition
For help contacting medical professionals that understand the links between nutrition and medicine, consult one of the following links.


Helpful Organizations
American Chronic Pain Association (ACPA) was founded in 1980 to provide resources for people coping with chronic pain. www.theacpa.org

Click here for suggestions on how to deal with the medical and emotional impact of caring for an ill child.

The nonprofit Patient Advocate Foundation seeks to assure patient access to care, maintenance of employment and financial stability.

The National Committee for Quality Assurance provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards Online.

The nonprofit Patient Services Incorporated, specializes in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses.

 WebMD is a handy medical reference that helps consumers take an active role in managing their health by providing objective healthcare and lifestyle information.

Click here for a pediatrician's guide to your child's health and safety.

The National Organization for Rare Diseases provides links to numerous other organizations that have disease-specific support groups and virtual communities for patients and caregivers.

American Autoimmune Related Diseases Association (AARDA) brings national focus to autoimmunity through research, education and patient services.

Bandaids and Blackboards, started by a nurse working on her dissertation, focuses on children with chronic illness.

Product Information
Click here to learn more about Vivaglobin — the subcutaneous immune globulin (SCIG).

Click here for more information about the 10% IVIG solution Gammagard Liquid.

Learn about IVIG treatment with Gamunex.

For information about influenza and the influenza vaccine, visit www.cdc.gov/flu or call
800-CDC-INFO (800-232-4636).


Education and Disability Resources
The Americans with Disabilities Act of 1990
provides protection for people with disabilities from certain types of discrimination and requires employers to provide some accommodations of the disability. For more information, visit http://www.usdoj.gov/crt/ada/adahom1.htm.

Consolidated Omnibus Budget Reconciliation Act (COBRA)

Social Security

California State Disability Insurance (SDI)
Please note that each state has a different disability program.

IDEA 2004 Resources   News and information on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA), the nation's law that works to improve results for infants, toddlers, children and youth with disabilities.

The National Disabilities Rights Network   This website offers a search tool to find resources in your state to assist with school rights and advocacy.

U.S. Department of Education Website
This US federal government website offers a parents section that has a subsection titled "My Child's Special Needs" that can be most helpful.

U.S. Department of Health and Human Services, Office of Civil Rights Your rights under Section 504 of the Rehabilitation Act.

 Wrightslaw  Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law and advocacy for children with disabilities.


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