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Dedicated to bringing comprehensive healthcare information, immune globulin information, community lifestyle and reimbursement news.

Posted on 2. August 2018

Dangling: Don’t Settle for False Hope in Treatment

Ilana Jacqueline, a primary immunodeficiency and dysautonomia patient, encourages patients not to wait for a cure to live life to the fullest. [More]
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Posted on 19. July 2018

You Are Worthy

When you're diagnosed with a chronic illness, no one tells you being sick isn't the only thing you will have to learn to cope with. You also have to learn to cope with the loss of your former self and the feeling of unworthiness that goes with the loss. [More]
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Posted on 21. June 2018

Keep Your Cool This Summer

What kid doesn't count the days until summer vacation starts? But, while kids are counting the days to summer bliss, many parents are panicking trying to think of things to keep their little darlings occupied while still remaining sane. [More]
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Posted on 7. June 2018

Knowledge Is Key to Patient Empowerment

Being diagnosed with a chronic illness is not easy. Patients are confronted with having to learn a lot of information in a short amount of time. For many, this can feel overwhelming. But, don't worry, this feeling is normal! One of the best ways to feel more in control is to learn as much about your disease and its treatments. [More]
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Posted on 17. May 2018

Diseases Are Not a Competition

Over the years, while dealing with my myriad chronic illnesses, I have found many people make it a competition about which illness is worse. Here is my story and why I believe that instead of competing with one another, we should try to stick together. [More]
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Posted on 3. May 2018

Living With Chronic Pain: A Pocket Guide to Relief

Chronic pain, American Society of Regional Anesthesia and Pain Medicine, treatment options, over-the-counter medications, oxycodone, nonsteroidal anti-inflammatory, mindful meditation [More]
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Posted on 19. April 2018

Are Your Prescriptions Cheaper Without Insurance?

The Neuropathy Action Foundation has been working on an issue since last summer, when an NBC Nightly News segment with Lester Holt aired titled "Prescriptions May Be Cheaper without Insurance." And, the practice may be harming neuropathy patients. [More]
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Posted on 5. April 2018

PI Shouldn’t Be Compared with Other Diseases

I want to address something serious today. As I am laying here getting my second infusion, I am thinking about conversations I have had with other patients this week. A common trend in the conversations is that patients have caregivers, family members or friends who say: "Well, at least you don't have cancer." [More]
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