Advocacy Groups
Public Support Organizations and Websites
American Autoimmune Related Diseases Association (AARDA)
Brings national focus to autoimmunity through research, education and patient services
American Chronic Pain Association (ACPA)
Founded in 1980 to provide resources for people coping with chronic pain
Bandaids and Blackboards
Started by a nurse working on her dissertation; focuses on children with chronic illness
CVID Support Group
This open forum is built to enable people facing life chanllenges living with CVID
KeepKidsHealthy.com
A pediatrician's guide to children’s health and safety
KidsHealth.org
Suggestions for how to deal with the medical and emotional impact of caring for an ill child
Myositis Support and Understanding
Research, education and advocacy within the Myositis community
National Committee for Quality Assurance
Provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards Online
National Infusion Center Association (NICA)
Established in 2010 as a 501(c)(3) non-profit organization formed to improve patient access to intravenous and injectable medications
National Organization for Rare Diseases
Provides links to numerous other organizations that have disease-specific support groups and virtual communities for patients and caregivers
The Neuropathy Association
The association's mission focuses on helping and healing people with peripheral neuropathy that encompasses providing neuropathy awareness, education, support, advocacy and research
Neuropathy Support Network
Dedicated to actively supporting patients, care givers and families affected by ALL forms of Peripheral Neuropathy
Patient Advocate Foundation
A non-profit foundation seeking to ensure patient access to care, maintenance of employment and financial stability
Patient Services Incorporated
A non-profit organization specializing in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses
WebMD
A handy medical reference that helps consumers take an active role in managing their health by providing objective healthcare and lifestyle information
