Current Issue's
Feature Articles
December - January 2026
Managing Your Medical Records and Life Documents
If you are living with a serious chronic medical condition, you have a lot of records to manage! A calendar full of clinical visits, lab tests, imaging appointments and referrals can create a trail of paperwork that can seem overwhelming. Keeping track of your medical records is an important part of managing your health, and with a bit of planning, the paper trail can be organized and tracked without adding to your stress level.… full article (pdf)
Retirement and Beyond: Planning for the Golden Years While Living with Chronic Illness
Retirement can be a joyful phase of life, but it can also bring unique challenges. Retirees often find themselves helping adult children transition to independence, assisting aging parents, transitioning to Medicare and, perhaps, working part time. All of these transitions can be even more complicated when managing the day-to-day challenges of chronic illness. As part of managing these transitions, it's important to evaluate assisted and independent living models, Medicare options, long-term care options and legal protections to take today to ensure peace of mind tomorrow… full article (pdf)
The Pharmacy Prescription Price Puzzle
Prescription drug costs have drawn far-reaching attention in recent years. For many patients, the price tag of essential medications — from diabetes insulin to cancer biologics and immune globulin (IG) therapy — can be staggering. In fact, a 2020 study estimated U.S. patients spent $358 billion out of pocket on prescription drugs over the previous decade. Additionally, prices of brand-name drugs in the U.S. are signi¬ficantly higher than in nearly all other high-income countries… full article (pdf)
Must-Have Kitchen Tools When Living with a Chronic Illness
Living with a chronic illness comes with daily challenges. Issues like chronic pain, fatigue or limited mobility can make everyday tasks di¬ cult and exhausting. Even preparing a simple meal can feel daunting, especially when the environment and equipment aren't designed with your needs in mind. Luckily, there are a number of kitchen tools that can help make these everyday tasks easier and safer. Following are tools, tips and equipment that can change your cooking routines for the better… full article (pdf)
Diagnosing and Treating X-Linked Agammaglobulinemia
X-Linked Agammaglobulinemia (XLA) is a rare, inherited primary immunode¬ficiency (PI) that prevents the body from producing antibodies needed to fight infections. Affecting males due to its X-linked inheritance pattern, XLA is one of the earliest described primary immunode¬ficiencies. With timely diagnosis and proper treatment, individuals with XLA can lead full and healthy lives. This article overviews the epidemiology, clinical signs, diagnosis, treatment and emerging research for XLA patients, caregivers and healthcare providers… full article (pdf)
