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Feature Articles

Apr - May 2024

Staying Socially Active with PI – Especially While Aging

Do you feel an ache for social connection? I bet you do. Humans are made for it! But cultivating healthy social connections is easier said than done, especially when you’re aging, dealing with a chronic disease such as primary immune deficiency (PI) - or both. The things that used to fill your social calendar might not work for you anymore. Maybe you are retired and miss daily interactions with co-workers and colleagues; your kids are grown, so little league games are a thing of your past, and you find yourself missing sideline chats with fellow parents; or you lost your spouse, a friend or even the ability to drive; or your aging body makes things you used to enjoy more difficult or impossible… full article (pdf)

Planes, Trains and Automobiles: Traveling with IG Therapy

Planning for travel can be stressful without a chronic health condition. But when traveling with a chronic illness and needing to also travel with immune globulin (IG) supplies, it is essential that you plan ahead. Proper research, proactive planning and preparation will allow you to travel with ease and confidence. Regardless of your destination or mode of transportation, there are easy yet essential steps to prepare you for seamless travel. Optimal travel planning should start approximately 12 weeks prior to the scheduled departure date. Start by aligning travel dates with projected infusion dates. Proactive planning provides ample time to work with your physician’s office and specialty infusion provider…  full article (pdf)

Medical Hypnosis: Evidence-Based Therapy for Chronic Pain and More

We have more control over our mind and body responses than we realize, even when diagnoses may cause us to feel powerless. When we are under mental or physical stress, often due to choices we make or circumstances that seem fully out of our control, we are more likely to have worsened pain, gastrointestinal symptoms, poor immune responses and susceptibility to illness because our bodies can’t function optimally. Hypnosis is commonly used to help with these things, from habit control, phobias, weight loss, improved sports or testing performance, confidence or a myriad of other desired changes…  full article (pdf)

Treating Idiopathic Neuropathy with Intravenous Immune Globulin

Treating neuropathy is nothing short of rocket science. No matter how neuropathy presents itself, treating it requires an individualized approach. The key is not to eliminate symptoms, but to mitigate them and improve quality of life, and one therapeutic avenue shows promise for doing just that: intravenous immune globulin (IVIG). While the root cause of idiopathic neuropathy continues to be elusive, IVIG provides both effective relief of symptoms and improved quality of life overall for many patients… full article (pdf)

Therapy and Adaptive Strategies for Multifocal Motor Neuropathy

Multifocal motor neuropathy (MMN) is a progressive muscle disorder characterized by weakness in the hands or feet, small uncontrolled twitching or spasms, muscle cramping and sometimes difficulty extending the wrist or fingers, a phenomenon known as wrist drop. MMN is an abnormal response of the immune system, damaging the nerves so that the signals do not reach the muscles that dictate movement. It progresses slowly with no sensory issues (e.g., tingling, numbness or pain); yet absence of deep tendon reflexes in the affected limb and excessive fatigue are commonly noted with ultimate atrophy or wasting of muscles occurring late in the course of the disease. It typically involves upper limbs more than lower extremities, but some patients will experience leg cramping or foot drop. Weakness is initially noted on one side of the body. And, symptoms usually appear during the fourth decade of life… full article (pdf)