Current Issue's
Feature Articles
August - September 2024
Navigating the Psychological Landscape of Primary Immune Deficiencies: Empowering Patients and Families
Living with a primary immune deficiency (PI) disorder is a multifaceted journey that encompasses not only the physical manifestations of the condition but also significant emotional and psychological challenges for patients and their families. PIs are rare and complex immune system disorders characterized by an increased susceptibility to infections, autoimmunity, autoinflammatory diseases and other health complications. While the medical aspects of PI often require specialized care and treatment, the psychological impact of living with a chronic illness can be equally profound. Coping with the relentless nature of these health issues can lead to chronic stress, anxiety and depression, affecting every aspect of a patient’s life… full article (pdf)
Thriving Alone: Strategies for Navigating Chronic Illness on Your Own
Living with a chronic illness can be an uphill battle, but facing it alone can make the journey even more daunting. While many people rely on friends, family or support groups for comfort and assistance, some individuals find themselves navigating the challenges of chronic illness entirely on their own. The idea of living well with a chronic illness may become significantly overwhelming for this population, as it is filled with physical, emotional and psychological challenges. (Overwhelming may seem like an understatement!) If you are one of these warriors, know that you are not alone. The following strategies can help you manage your condition and live your best life even without a traditional support network… full article (pdf)
Coping with Chronic Illness at College
Can college and chronic illness mix? Absolutely! Thousands of young adults live with chronic illnesses just like you do, and a great many of them successfully attend college. Thankfully, colleges and universities are well equipped with staff members and resources designed to help you navigate your transition and support you throughout your college career. In fact, your college experience can even be tailored to meet your unique needs… full article (pdf)
Moving Toward Better Health
Physical activity is a critically important part of physical and mental health and well-being. The World Health Organization (WHO) has found that one in four adults do not meet the global recommended levels of physical activity. A 2018 study about exercise perceptions and behaviors found approximately 40 percent of individuals with primary immune deficiency disease (PI) were not engaging in any exercise. Exercise provides significant benefits that improve overall health and well-being, reduces symptoms of anxiety and depression and contributes to chronic disease management… full article (pdf)
Plasma Donation FAQs
Plasma donations save countless lives each year. Donated plasma is used to produce a variety of plasma-derived medicines that are often the only therapies for many rare and chronic diseases. One of those plasma-derived medicines is immune globulin (IG), which is approved by the U.S. Food and Drug Administration (FDA) to treat immunodeficiency diseases, immune thrombocytopenic purpura, chronic lymphocytic leukemia, chronic inflammatory demyelinating polyneuropathy, Kawasaki disease, multifocal motor neuropathy and dermatomyositis. IG therapy is also prescribed off label (meaning it is not approved by FDA) to treat other autoimmune and inflammatory disorders… full article (pdf)