Advocacy Groups
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Public Support Organizations and Websites

American Autoimmune Related Diseases Association (AARDA)

Brings national focus to autoimmunity through research, education and patient services

American Chronic Pain Association (ACPA)

Founded in 1980 to provide resources for people coping with chronic pain

Bandaids and Blackboards

Started by a nurse working on her dissertation; focuses on children with chronic illness

CVID Support Group

This open forum is built to enable people facing life chanllenges living with CVID

Immunoglobulin (Ig) Therapy

Provides clinicians and patients with information that can assist them in optimizing immune globulin therapy

KeepKidsHealthy.com

A pediatrician's guide to children’s health and safety

KidsHealth.org

Suggestions for how to deal with the medical and emotional impact of caring for an ill child

Myositis Support and Understanding

Research, education and advocacy within the Myositis community

National Committee for Quality Assurance

Provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards Online

National Infusion Center Association (NICA)

Established in 2010 as a 501(c)(3) non-profit organization formed to improve patient access to intravenous and injectable medications

National Organization for Rare Diseases

Provides links to numerous other organizations that have disease-specific support groups and virtual communities for patients and caregivers

The Neuropathy Association

The association's mission focuses on helping and healing people with peripheral neuropathy that encompasses providing neuropathy awareness, education, support, advocacy and research

Neuropathy Support Network

Dedicated to actively supporting patients, care givers and families affected by ALL forms of Peripheral Neuropathy

Patient Advocate Foundation

A non-profit foundation seeking to ensure patient access to care, maintenance of employment and financial stability

Patient Services Incorporated

A non-profit organization specializing in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses

WebMD

A handy medical reference that helps consumers take an active role in managing their health by providing objective healthcare and lifestyle information