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IG Living Advocate Podcast
Every quarter, IG Living will hold a podcast on a topic that affects those with autoimmune and immunodeficiency disorders. Industry experts will share the latest immune globulin (IG) news and information and answer questions from our community.
Podcasts will cover topics such as the increased demand for IG products, Medicare, IG side effects, and reimbursement. more info
Listen to the episode Spring Health Check-In: Small Changes, Real Results.
To receive notifications about upcoming podcasts, subscribe to IG Living Magazine. subscribe now
Columns
Let's Talk! – Amy Johnson
Amy Johnson lived for years with recurring pneumonia and bronchitis before finally receiving a diagnosis of common variable immune deficiency (CVID) in 2011. Today, she uses her voice and social media presence to raise awareness about primary immunodeficiency and to show that life with a chronic illness can still be rich with adventure and purpose. Whether she’s hiking in Alaska, training for a race or traveling with her treatment supplies in tow, Amy is determined to live life fully while encouraging others to do the same… full article (pdf)
Book Corner
New and useful reading
Side Effects May Include Everything: A Real-Talk Guide to Living, Laughing, and Thriving with Chronic Illness | The Alignment Pathway: Your Guide To Decoding, Aligning & Thriving (Decode, Align & Thrive with Chronic Illness Book 2) | Every Scar Has A Story: Strength Is Written In Scars | Reclaiming Wellness with Chronic Illness: Every Day Steps to Live Well in Tough Times… full article (pdf)
Ask the Experts
Reader: If I’m Treated with IG Therapy, Do I Still Need to Get Vaccinated, and if So, Which Vaccines Should I receive?
Abbie: I reached out to Brett Kettelhut, MD, a board-certified allergist-immunologist at Omaha’s Elkhorn Dermatology in Omaha, Neb., who explained that while IG products are made from the plasma of thousands of donors and contain a broad mix of antibodies, the amount of antibody for any specific disease is not measured. So, while IG may oer some degree of protection, it is not possible to know how much protection it provides against a particular infection or which antibodies are present in amounts that would be protective for an individual patient… full article (pdf)
Meet the Staff
Advisory Board
Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego
Terry O. Harville,
MD, PhD
Medical Director Special Immunology Laboratory University of Arkansas for Medical Sciences
Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona
Fred Modell
Co-founder of the Jeffrey Modell Foundation
Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego
Patient Advocate
Ask the Experts – Get answers from experts about issues related to immune-mediated diseases?
Advocacy Groups – Living with a chronic illness? Reach out, seek help and find a community.
Take Action – Everyone can advocate for healthcare treatment and reimbursement issues.
Share Your Story – Help others by sharing your experience with chronic illness!
